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My Brains are in My

butt

A Journey Through

Chronic Illness:

Ehlers-Danlos Syndrome

ABOUT THE TITLE?

Ehlers- Danlos Syndrome (EDS) is a genetic disorder affecting every connective tissue in the body. The body of an individual with EDS cannot properly form collagen, the "glue" that holds the body together. The resulting weakness causes many debilitating symptoms and an array of disorders may accompany EDS.

Some individuals with EDS, such as the author of this site (Susan S), can also have Cranio-Spinal Instability. This complication is a lack of stability of the neck and skull, and the skull may sink down onto the brain, forcing the cerebellum out of the skull creating a condition called cranial settling (also sported by Susan S).  Hence, it seems like the brains are falling into the butt!

  The resulting pressure on the cerebellum and the brainstem progressively damages both structures over time. In addition to this, the odontoid bone in the neck, due to lack of stability, may push backwards into the brainstem, causing further damage.

The cerebellum controls the body's sensory processing center. The brainstem controls the autonomic nervous system, or all the body's functions that you do without thinking. Dysautonomia, or the dysfunction of the autonomic nervous system, often results from damage to these vital parts of the brain. This can affect all of the body's organ systems.

All of these disorders can occur in conjunction with each other, and combined they can cause all the symptoms listed here, and many more: Severe headache and neck pain, dizziness, lightheadedness, nausea and/or vomiting, vertigo, palpitations, difficulty swallowing, visual disturbances, ringing in the ears, sleep apnea, impaired fine motor skills, muscle weakness, poor temperature regulation, and seizures.

All-in-all, this is not a good thing to have.  Unfortunately, too many people with EDS struggle with droopy brains.

(c) Susan Spitzer 2017

(c) Susan Spitzer 2017

(c) Susan Spitzer 2017

A Journey Through Chronic Illness:

Ehlers-Danlos Syndrome

My Brains are in My

butt

(c) Susan Spitzer 2017

(c) Susan Spitzer 2017